Even with an improved prognosis, the diagnosis, treatment and long-term effects are a very stressful and frightening experience for children and their families.
Although many children now survive cancer, the battle does not end there. More than 73% will have chronic health problems as a consequence of the aggressive treatments they receive.
42% of survivors will suffer severe or life-threatening conditions such as cognitive late-effects, PTSD, physical disabilities, depression, heart disease and secondary cancers.
Despite the common perception, the combination of physical and intellectual impairments not only greatly affects children and their families during treatment, but for the rest of their lives.
While friends and family may offer support, families often feel that only those who have lived through a similar experience can truly understand the difficulty of the journey.
Existing resources are only available during treatment or follow-up visits and
well-intentioned support initiatives by outside organizations are temporary and insufficient.
Richi House is a program of the Richi Foundation that seeks to offer pediatric cancer patients, survivors, and families a non-clinical community center close to pediatric cancer hospitals where they can share the difficult journey that starts with diagnosis and continues beyond treatment with other families.
Richi House is a one-of-a-kind welcoming environment where families can unwind, get to know one another, and share their experiences while engaging in different types of activities.
Structured psychosocial support to guide families coping with treatment and side effects.
Qualified professionals providing specially tailored therapeutic programs.
Activities to facilitate informal interaction and the development of social relationships between families.
Educational support for survivors who have developed cognitive deficits and learning difficulties or disabilities.
Recreational activities designed to entertain individuals or groups of children and teenagers.
Long and short term private apartments for displaced families who are in treatment or follow-up care.